An unprecedented joint mobilization in France since 2017, with quality exchanges that have made it possible to obtain strong progress for children with cancer and disabilities, but which must be completed through 3 main objectives, set out by the associations, elected officials and professionals concerned...
The 3 remaining objectives:
Make France exemplary in terms of social support by supplementing existing measures for families of children with cancer and disabilities, through the upcoming vote on the PPL of Charlotte Goetschy-Bolognese and Vincent Thiébaut • Deputy , which aims in particular to introduce a "zero remaining charge" for these families, to significantly reduce the time taken to award the AEEH, to simplify a set of procedures, to take charge of housing near the hospital...
Take research to the end by increasing the fund dedicated to research into pediatric cancers , increasing it from 5 to 20-25M€/year in order to open it up to pediatric oncology clinical research
Implement a strong initiative in favor of the development of pediatric treatments , which are currently very insufficient for cancers and serious diseases with poor prognosis in children.
All our proposals are reasoned, quantified, accessible. In view of the strong mobilization of parliamentarians, their listening (sometimes accentuated by personal experiences) we do not doubt for a single moment that collective intelligence will prevail, in order to protect in an exemplary way all these children, whose first dream is to live and grow!