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2nd pediatric cancer conference at the National Assembly - 15 mai 2019

On Wednesday May 15, 2019, the deputy of Hauts-de-Seine and quaestor Laurianne Rossi, as well as the deputy of Gironde Benoît Simian organized, with the Federation Grandir Sans Cancer, of which the association Eva pour la vie is co-founder, a conference on the fight against cancer and incurable pediatric diseases. A strong and unprecedented step in the National Assembly.

In a full house, many deputies - including Laurianne Rossi, Benoit Simian, Sereine Mauborgne, Eric Diard, Perrine Goulet, Béatrice Descamps, Pierre Cabare, Loïc Dombreval, Jean-Christophe Lagarde, vice-president of the cancer study group Michel Lauzzana ... - had come to hear the researchers, the associations which made an inventory on the financing of oncopediatric research, several social aspects and the gift of life. The speeches were brilliant, the deputies attentive and force of proposals.

Stéphane Vedrenne, co-founder of Eva pour la vie, was able to present with the researchers a theme on the current state of research funding. Despite the progress achieved at the end of 2018 under our leadership (a fund of 5 million euros / year), it is necessary to go further in terms of financing, and to ensure that the new resources allocated correspond to the emergencies of pediatric cancer research, He also intervened, with Sonia (Around Evan) and Pascaline (Lucie's smile) on the issue of the public death benefit for parents who lose a child.

2019 will be another year of progress for sick children and their families. You can count on our determination, as well as many associations, to ensure that all issues are dealt with. Children and families deserve it.

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