Charity dedicated to the fight
against childhood cancer
against childhood cancer
Stéphane Vedrenne, co-founder of Eva pour la vie and Stéphanie Ville, president of Aidons Marina were invited to a substantive meeting at the National Cancer Institute dealing with research on pediatric cancers, in the presence of other associations (league, bow, unapecle, childhood and cancers, sfce, Laurette Fugain, Imagine for Margo).
A meeting of free exchanges, sometimes very frank but healthy clarifications. The current dynamic at the financial level (5 million euros / year recently allocated to research on pediatric cancers, knowing that the objective remains to increase this amount and include it in the LOI) and even, mentalities seems to be going in the right direction, although we remain vigilant. In January 2019, we will submit a detailed dossier of detailed recommendations, worked out in partnership with the associations of the Grandir Sans Cancer federation, as well as the scientific community involved in pediatric cancer research.
You can count on us to carry out all possible actions to accelerate research on pediatric cancers, and that families be helped with dignity.
On Wednesday May 16, the deputy of Gironde Benoît Simian organized, with the Federation Grandir Sans Cancer, of which the Eva pour la vie association is co-founder, a conference on the fight against cancer and incurable pediatric diseases. A first for the National Assembly.
This February 15, for the attention of the International Childhood Cancer Day, a very nice report from Arte on pediatric cancers. And on the Growing Up Without Cancer federation, of which Eva pour la vie is a co-founder. Public generosity is today the main mode of support for research on pediatric cancer. This is insufficient when we know that the French State has the means to act, for children, for families.
See the report: https://www.arte.tv/fr/videos/081257-000-A/france-les-cancers-pediatriques-a-la-traine/
Because more children need to be treated, but a real prevention policy must ALSO be put in place, Eva pour la vie has decided to finance the HAPPI study, aimed at looking for pesticides in room dust. 'children, schools. Places of nurtured lives where our children should feel safe.
Continuing its work to inform the public authorities newly at the head of the country, the Federation Growing Up Without Cancer - of which Eva pour la vie is a co-founder - was received on Friday February 2 in Matignon by the technical adviser to the health of the Prime Minister , Mr. Guillaume Couillard to discuss the issue of the fight against childhood cancer ...
Eva for Life supports - with your help - research on childhood cancer, but not only. Whether a child has cancer, leukemia or another serious disease, the observation is the same: solutions must be found, for research, to help families, without pitting a child against a child. other.
This Monday, December 11, the Lyon International Cancer Research Center hosted, under the leadership of Drs Marie Castet & Christophe Bergeron and their team, the 1st colloquium on basic research in pediatric oncology. Many researchers and associations, including the Eva pour la vie association, were present. 3 political decision-makers - including the former MP Martine Faure - were also stakeholders.
On Friday November 17, a check in the amount of 29,463 euros was given to Inserm in Bordeaux - to support the research work of Caroline Capdevieille - by Michel Baylet, President of Groupama Center-Atlantique, and Sophie Dancygier - General Delegate of the Groupama Foundation for Health. Christophe Grosset - Research Director and Martin HAGEDORN, teacher and researcher at INSERM Bordeaux, as well as Stéphane Védrenne, co-founder of the Association Éva pour la Vie, partner of this collaboration, were also present for this check discount.
THANKS to Senator Alain Fouché from Vienna, who questioned this AM Ms. Buzyn, Minister of Health, on the low funding for pediatric oncology research. The disengagement of the French State in this area over the past 20 years is visible today with the story of little Robin, mentioned by the senator, and many other children, whether or not supported by social security. : Will we have to send our children - suffering from the most difficult cancers - abroad so that they have a chance of being cured?
The representatives of the Eva Pour la Vie association and the Cassandra Association, accompanied by Doctor Marie CASTETS, researcher at the Cancer Research Center of Lyon, had an appointment at the Ministry of Research with Isabelle RICHARD, health advisor at the cabinet of the Minister.
The amendment proposed by the deputy of the Gironde Benoit Simian - whom we thank for his unwavering involvement - aiming to allocate 20 million euros / year to the funding of research on pediatric cancer & leukemia (via the Chirac tax on plane tickets, which already exist and would therefore not have generated a new tax) was discussed overnight from Saturday to Sunday - around 2 a.m. - at the National Assembly.
